News & Stories
When Dale and Judy Ziegele of Ridgefield, WA, received Dale’s diagnosis of ALS in September of 2022 at the age of 79, their focus changed. Dale and Judy have been…
Blog post from the ALS Association. View original source. Current status On April 25, 2023, the FDA approved tofersen under the agency’s accelerated approval pathway for the treatment of people living…
One day, Bruce Stoddard started to notice his right ankle acting strange, as if it was asleep all the time. He spent a year and a half trying to find…
Larry Holtry is a positive guy. He always has been. He spent over 30 years in a lucrative sales career, where a positive attitude is essential to be successful. When…
Hope Loves Company is a nonprofit organization that provides emotional and educational support to children and young adults who have or had a loved one battling Amyotrophic Lateral Sclerosis (ALS)…
Multidisciplinary care, a term for when professionals from a range of disciplines work together to deliver comprehensive care, is incredibly valuable for people living with ALS. At an ALS Clinic,…
Blog post from the ALS Association. View Original Source. The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital and the Northeast ALS (NEALS) Consortium announced topline results…
Virtual Caregiver Bootcamp There are bootcamps in the spring and fall, the dates for 2023 are: April 17th – 21st, 2023: Learn more and register here. October 16th – 20th,…
Dedicated Teacher, Mother and Grandmother Ruth was diagnosed with primary lateral sclerosis (PLS) at OHSU in 2003 while working as an elementary school teacher in Coos Bay, Oregon. After 31…
Read below for more insight from Care Services Director Cassy Adams So, what does 356 home visits really mean? It means that you have five care services coordinators – going out…