News & Stories
Spotlight on the Elinore Nudelman ALS College Savings Program Michael “Mike” Canepa passed away in December of 2023 after a several-year battle with ALS. His daughter, 12-year-old Isabella “Izzy” Canepa,…
Deirdre Leiner wasn’t shocked when she received her ALS diagnosis in September 2023. Her father, grandfather, and even great-grandfather all had the disease. Familial ALS is rare and comprises 5-10%…
Family Fun Day: Save the Date! We invite people living with ALS and their families to join us for the following Family Fun Day Events this summer/fall. We hope you’ll…
We are grateful to receive program funding through private and public foundations. These partners directly support care services, family and youth programming, support groups, medical equipment, and augmentative equipment and…