News & Stories

Matter of Mind: My ALS | An interview with the film subject

August 14, 2023 Comments Off on Matter of Mind: My ALS | An interview with the film subject

Matter of Mind: My ALS is a new documentary that follows three people living with ALS. The film is available to stream for free here with the password: ALS. Development…

Reflections on Our 2022 Events Successes

August 11, 2023 Comments Off on Reflections on Our 2022 Events Successes

Events Director Holly Miller reflects on the success of last year’s fundraising events. Holly shares thoughts on the impact of last year’s events. I feel so proud when I look…

Humed Yusuf of Beaverton, Oregon

August 10, 2023 Comments Off on Humed Yusuf of Beaverton, Oregon

Humed Yusuf was born in Bangladesh and dreamed of moving to the US. He came to Kentucky for college and following school, explored New York, Wisconsin, and Oregon. “I think…

Vashti Ross of Beaverton, OR

June 29, 2023 Comments Off on Vashti Ross of Beaverton, OR

Vashti Ross passed away on Tuesday, July 11th. She was incredible champion for our mission and will be missed. Vashti Ross was diagnosed with ALS in 2014. Knowing that research…

Keith Matteson Authors His ALS Journey

June 13, 2023 Comments Off on Keith Matteson Authors His ALS Journey

Keith Matteson died on Tuesday, August 15th. He was a dedicated champion of our cause, and he will be missed. Keith Matteson of Newport, Oregon was diagnosed with ALS in…

New support group: In-person grief support

May 2, 2023 Comments Off on New support group: In-person grief support

A new, in-person grief support group begins Thursday, May 11, 2023. This session will take place from 1:00 -2:30 PM at the Lake Oswego Adult Community Center.  ALS Association of Oregon…

Legacy Building – The Ziegele Family Experience

April 30, 2023 Comments Off on Legacy Building – The Ziegele Family Experience

When Dale and Judy Ziegele of Ridgefield, WA, received Dale’s diagnosis of ALS in September of 2022 at the age of 79, their focus changed.   Dale and Judy have been…

FDA Approves new drug: Qalsody (tofersen)

April 25, 2023 Comments Off on FDA Approves new drug: Qalsody (tofersen)

Blog post from the ALS Association. View original source. Current status On April 25, 2023, the FDA approved tofersen under the agency’s accelerated approval pathway for the treatment of people living…

Bruce Stoddard of Vancouver, Washington

April 24, 2023 Comments Off on Bruce Stoddard of Vancouver, Washington

One day, Bruce Stoddard started to notice his right ankle acting strange, as if it was asleep all the time. He spent a year and a half trying to find…

Larry Holtry of Beaverton, Oregon

April 24, 2023 Comments Off on Larry Holtry of Beaverton, Oregon

Larry Holtry is a positive guy. He always has been. He spent over 30 years in a lucrative sales career, where a positive attitude is essential to be successful. When…