News & Stories

Gabriel O'Brien

7 Questions with Our New Care Services Coordinator

October 8, 2024 Comments Off on 7 Questions with Our New Care Services Coordinator

Gabriel O’Brien is the new Care Services Coordinator for the Portland metro region at ALS Northwest. Jennifer Jordan from our communications team recently sat down with him to share more…

6 Books By and About People with ALS

October 7, 2024 Comments Off on 6 Books By and About People with ALS

October is National Book Month! ALS Northwest staff compiled six book recommendations from our local ALS community in Oregon and SW Washington and beyond. Not all books are about ALS,…

Navigating Grief Newsletter: Fall 2024

October 1, 2024 Comments Off on Navigating Grief Newsletter: Fall 2024

Fall is sometimes associated as a “season of loss” as daylight hours shorten, temperatures drop, and leaves turn vivid colors before falling to the ground. In many communities, the season…

Terry Smith and his Walk team

The Power of ALS Research: Terry Smith

August 14, 2024 Comments Off on The Power of ALS Research: Terry Smith

A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…

Reflections on Our 2023 Special Events

August 13, 2024 Comments Off on Reflections on Our 2023 Special Events

Holly Miller, Development Director of Special Events and Corporate Relations, reflects on the success of last year’s fundraising events. Thanks to our incredible community, we provided care services to 639…

Power wheelchairs

Spotlight on the Medical Equipment Program  

August 13, 2024 Comments Off on Spotlight on the Medical Equipment Program  

Through our Medical Equipment Program, ALS Northwest fills in the gaps and reduces costs for people living with ALS. This article is from the 2023 Annual Report. Since 2002, ALS…

ALS United logo

ALS United Launches New Website

August 1, 2024 Comments Off on ALS United Launches New Website

FOR IMMEDIATE RELEASE August 1, 2024 – ALS United, a membership organization dedicated to highlighting and supporting the work of its members in serving the ALS community, is proud to…

Laboratory Team Working Together

Support ALS Research

July 12, 2024 Comments Off on Support ALS Research

Have you heard? RAPA Therapeutics’ recent Expanded Access Protocol (EAP) allows people with ALS who are otherwise ineligible for clinical trials to access a promising new treatment called RAPA-501. Donors…

FNIH and ALS Northwest logos

Accelerating Medicines Partnership (AMP) ALS Initiative

July 12, 2024 Comments Off on Accelerating Medicines Partnership (AMP) ALS Initiative

ALS United, along with its dedicated members, has taken a significant step in the battle against amyotrophic lateral sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…

Colin Meagher

Living Well with ALS: Colin Meagher

July 10, 2024 Comments Off on Living Well with ALS: Colin Meagher

Colin Meagher’s story is one of adventure. A former photographer by trade, Colin also had a passion for snowboarding, climbing, and other high-adrenaline outdoor activities. He attends the Hood River ALS…