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News & Stories

Genetics, Community, and ALS: Anne Moffett of Eugene, Oregon

April 21, 2026 Comments Off on Genetics, Community, and ALS: Anne Moffett of Eugene, Oregon

Photo: Anne Moffett with Bill Hankins, a person who lives with ALS in Eugene, Oregon, and Mary Rebar, an ALS Northwest Care Services Coordinator. Oftentimes, with a rare disease like…

Navigating Grief Newsletter: April 2026

April 8, 2026 Comments Off on Navigating Grief Newsletter: April 2026

Grief During the Spring Spring is a time of rebirth and renewal. Everywhere we look; new leaves and flowers are emerging to replace the drearier days of winter. People start going outside…

Living Well with ALS: Angie Quandt

April 6, 2026 Comments Off on Living Well with ALS: Angie Quandt

Angie Quandt’s story was featured at the ALS Northwest Wine, Dine & Unwind event in early 2026. She exemplifies grace while navigating ALS with the help of her family and ALS Northwest. …

Walking for an ALS Cure: John Nicolaisen

April 3, 2026 Comments Off on Walking for an ALS Cure: John Nicolaisen

One small step can make a big impact.  John Nicolaisen, of Redmond, Oregon faces ALS with courage, humor, and the support of his large community, including his wife Joene. Through his involvement with…

What Showing Up for Walk ALS Means to Claire Sharp

April 2, 2026 Comments Off on What Showing Up for Walk ALS Means to Claire Sharp

Claire Sharp’s story is one of resilience, advocacy, and connections. Her favorite time of the year is when the ALS Northwest walk fundraiser comes to her community in Southern Oregon, not only raising money for…

Letters of Intent for ALS Research Funding Accepted March 16 – April 20

March 16, 2026 Comments Off on Letters of Intent for ALS Research Funding Accepted March 16 – April 20

ALS Northwest proudly announces Letters of Intent for ALS research funding will be accepted March 16 – April 20, 2026. Researchers interested in applying can learn more and submit their…

ALS United Advocacy Bulletin: March 2026

March 10, 2026 Comments Off on ALS United Advocacy Bulletin: March 2026

ALS United Applauds ALS Funding Increases in 2026 Government Spending Package ALS United, of which ALS Northwest is a member, recognizes the advocates across the ALS community whose sustained engagement…

One-of-a-Kind Organization: ALS Northwest

March 6, 2026 Comments Off on One-of-a-Kind Organization: ALS Northwest

A new era has begun. Across the country, many nonprofits serve the ALS community — but there is only one ALS Northwest. Now, more than ever, we want to underscore…

Donate by March 31 to Help People Living with ALS Stay Connected

February 28, 2026 Comments Off on Donate by March 31 to Help People Living with ALS Stay Connected

For many of us, being able to speak and feel heard are important parts of how we connect with loved ones. Sending a text or signing on to a video call is something we barely even have to think about today. But that’s often not true for a person living with ALS. Losing your voice or the use of your hands and…

Living Well with ALS: Marc Waddell 

February 13, 2026 Comments Off on Living Well with ALS: Marc Waddell 

After his ALS diagnosis in 2021, Marc Waddell felt alone. Today, he has a loving wife and leans on other supports like ALS Northwest as he navigates this disease. Marc Waddell is from a small town in the Teton…