News & Stories

Two people living well with ALS.

Provide Connection for People Living with ALS this Holiday Season

November 7, 2025 Comments Off on Provide Connection for People Living with ALS this Holiday Season

Make sure no one has to face ALS alone. Give by December 31! Connection, friendship, family… these are basic human needs. We take for granted our ability to connect with…

Robert Packard Center for ALS Research Announces Joint Research Funding

November 5, 2025 Comments Off on Robert Packard Center for ALS Research Announces Joint Research Funding

Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership The Robert Packard Center for ALS Research at Johns Hopkins and ALS United — including ALS…

Researchers working in a lab.

ALS Research Innovation Program

November 3, 2025 Comments Off on ALS Research Innovation Program

ALS Northwest has always believed in the power of funding science and research at every stage, from the earliest discoveries at the lab bench to the clinical trials that pave…

Kim Hamlet

Living Well with PLS: Kim Hamlet

October 13, 2025 Comments Off on Living Well with PLS: Kim Hamlet

Kim Hamlet has been living with primary lateral sclerosis (PLS) for more than 25 years — a slow-progressing neurological disease that hasn’t stopped her from showing up for herself, her…

Embark Logo

Oregon College Savings Plan Rebrands to “Embark”

October 10, 2025 Comments Off on Oregon College Savings Plan Rebrands to “Embark”

The Elinore Nudelman ALS Savings Program provides a funded 529 Savings Plan through Embark (formerly the Oregon College Savings Plan) for children with a parent or guardian currently living with ALS…

Navigating Grief blog cover image

Navigating Grief Newsletter: October 2025

October 2, 2025 Comments Off on Navigating Grief Newsletter: October 2025

A Change of Season Fall is my Grief Season. How about you? (What’s Your Grief) In this piece, author Eleanor Haily describes herself  as “operating under the influence of fall,…

People holding dollar sign

Introducing: Donor Giving Circles

September 29, 2025 Comments Off on Introducing: Donor Giving Circles

Donors fuel ALS Northwest’s mission, making it possible for us to provide compassionate care for people living with ALS through services like home visits, medical equipment and support groups while…

Dawn McCrea with her mother

Living Well with ALS: Dawn McCrea

September 23, 2025 Comments Off on Living Well with ALS: Dawn McCrea

Dawn McCrea was diagnosed with ALS just over 20 years ago at age 40. Today, she continues to defy every expectation. And she’s not just surviving — she actively seeks…

Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

September 16, 2025 Comments Off on Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

On July 4, 2025, H.R.1 became law, bringing significant changes to federal healthcare programs. The legislation modifies federal spending for Medicaid, Medicare, and the Affordable Care Act (ACA) over the…

Tyler and Berenger with their families

A Commitment Rooted in Friendship: Zerorez Gives Back 

August 20, 2025 Comments Off on A Commitment Rooted in Friendship: Zerorez Gives Back 

When Tyler Hamberg helped open a business in Eugene, Oregon in 2016, he had no idea that the first person he’d hire would become one of the most important people…