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News & Stories

ALS United Advocacy Bulletin: March 2026

March 10, 2026 Comments Off on ALS United Advocacy Bulletin: March 2026

ALS United Applauds ALS Funding Increases in 2026 Government Spending Package ALS United, of which ALS Northwest is a member, recognizes the advocates across the ALS community whose sustained engagement…

Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

September 16, 2025 Comments Off on Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

On July 4, 2025, H.R.1 became law, bringing significant changes to federal healthcare programs. The legislation modifies federal spending for Medicaid, Medicare, and the Affordable Care Act (ACA) over the…

Springing Into Action: Walks, Advocacy and What’s Ahead

April 14, 2025 Comments Off on Springing Into Action: Walks, Advocacy and What’s Ahead

Updates From Our Executive Director: With spring in full bloom and as we move into this new year together, I’m looking forward to connecting with you more regularly through blog…

Accelerating Medicines Partnership (AMP) ALS Initiative

July 12, 2024 Comments Off on Accelerating Medicines Partnership (AMP) ALS Initiative

ALS United, along with its dedicated members, has taken a significant step in the battle against amyotrophic lateral sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…

ALS Northwest Partners with I AM ALS

March 14, 2024 Comments Off on ALS Northwest Partners with I AM ALS

ALS Northwest is partnering with I AM ALS on several federal funding priorities (I AM ALS website). We urge Congress to fully fund the Accelerating Access to Critical Therapies (ACT)…

Ron Newbury: How You Can Contribute to the Fight Against ALS

February 14, 2024 Comments Off on Ron Newbury: How You Can Contribute to the Fight Against ALS

67-year-old Ron Newbury, a native of Whitefish, Montana, moved back to Oregon in 2020. Ron has always embodied a passion for the outdoors and sports. Whether it was running marathons,…

Turn your Ducks watch party into an ALS benefit

August 29, 2023 Comments Off on Turn your Ducks watch party into an ALS benefit

Did you hear that University of Oregon’s starting quarterback Bo Nix has pledged to donate $100 for every touchdown he scores in the 2023 season? We’re asking our community to…