News & Stories
Willie is an incredible example of what it looks like to stay humorous and engaged in community—even while facing a difficult diagnosis. Before Willie’s ALS diagnosis on April 10, 2023,…
William Moore of Phoenix, Oregon prioritizes community and chooses gratitude daily. He encourages people with ALS to stay connected and take advantage of support groups. William has never been one…
Karolyn Dibetta lives on a peaceful, hilltop property spanning 14 acres in the small town of Merlin, Oregon (near Medford). Recently diagnosed with ALS, Karolyn is navigating this journey with…
George Lee lives in Bend, Oregon with his wife Caryn and cat Tuffin. George is an Army Veteran with a long and distinguished career as a Military Police Officer and…
John Morehouse of Hood River, OR speaks highly of the services available to him through ALS Northwest. He shared, “I’ve never experienced the kind of support I get for ALS……
A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…
Colin Meagher’s story is one of adventure. A former photographer by trade, Colin also had a passion for snowboarding, climbing, and other high-adrenaline outdoor activities. He attends the Hood River ALS…
Whitney Parnell is a current board member. She generously contributed the story below about her father, Steven Stern, and his ALS diagnosis. Steven passed away in 2015. When someone you…
Rhonda Baumann is a long-time participant of the ALS Ride. She gathers her community annually for the Beers and Gears ALS Ride in July. Rhonda resides with her husband in…
Deirdre Leiner wasn’t shocked when she received her ALS diagnosis in September 2023. Her father, grandfather, and even great-grandfather all had the disease. Familial ALS is rare and comprises 5-10%…