News & Stories

Colin Meagher

Living Well with ALS: Colin Meagher

July 10, 2024 Comments Off on Living Well with ALS: Colin Meagher

Colin Meagher’s story is one of adventure. A former photographer by trade, Colin also had a passion for snowboarding, climbing, and other high-adrenaline outdoor activities. He attends the Hood River ALS…

A man with ALS standing in front of a view of a mountain in the background

Moments I’ll Never Forget: Whitney Parnell’s Story

June 28, 2024 Comments Off on Moments I’ll Never Forget: Whitney Parnell’s Story

Whitney Parnell is a current board member. She generously contributed the story below about her father, Steven Stern, and his ALS diagnosis. Steven passed away in 2015. When someone you…

A smiling woman rides a trike alongside a dog

Living Well with ALS: Rhonda Baumann

June 14, 2024 Comments Off on Living Well with ALS: Rhonda Baumann

Rhonda Baumann is a long-time participant of the ALS Ride. She gathers her community annually for the Beers and Gears ALS Ride in July. Rhonda resides with her husband in…

Deirdre Leiner, a person living with ALS

Living Well with ALS: Deirdre Austin

May 21, 2024 Comments Off on Living Well with ALS: Deirdre Austin

Deirdre wasn’t shocked when she received her ALS diagnosis in September 2023. Her father, grandfather, and even great-grandfather all had the disease. Familial ALS is rare and comprises 5-10% of…

Glenn Freese sitting in his home

Living Well with ALS: Glenn Freese

April 1, 2024 Comments Off on Living Well with ALS: Glenn Freese

Glenn Freese is a people-person and musician who now advocates for those in assisted living facilities.  Like many people living with ALS, Glenn noticed symptoms years before his official diagnosis.…

Alice McGrew smiles

Living Well with PLS: Alice McGrew

March 28, 2024 Comments Off on Living Well with PLS: Alice McGrew

Alice McGrew lives in Vancouver, WA with her service dog, Cindy Lou. From the table in her dining room, we enjoyed a serene view of a lush backward.  Alice noticed…

Claire Sharp with her Walk ALS team, "We Are SHARP!"

Living Well with ALS: Claire Sharp

March 8, 2024 Comments Off on Living Well with ALS: Claire Sharp

Claire emphasizes ALS awareness and a value of honest communication through participation in the annual Walk ALS.  Claire Sharp is an active participant in the annual Walk ALS with her…

Sherry LaSalle in her living room

Living Well with ALS: Sherry LaSalle

March 1, 2024 Comments Off on Living Well with ALS: Sherry LaSalle

Sherry’s story highlights the importance of support systems and proactivity in navigating this challenging disease. A California native, Sherry LaSalle moved to Oregon in November of 2020 at the behest…

Ron and his wife smile with their arms around each other in an outdoor scene

Ron Newbury: How You Can Contribute to the Fight Against ALS

February 14, 2024 Comments Off on Ron Newbury: How You Can Contribute to the Fight Against ALS

67-year-old Ron Newbury, a native of Whitefish, Montana, moved back to Oregon in 2020. Ron has always embodied a passion for the outdoors and sports. Whether it was running marathons,…

Cathy Davies: Caregiver Spotlight

November 29, 2023 Comments Off on Cathy Davies: Caregiver Spotlight

Cathy Davies and Sue Mullenburg have been together for 20 years. This couple is an inspiring example of the sacrifices partners make in the face of an ALS diagnosis. They…