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News & Stories

Living Well with ALS: Dawn McCrea

September 23, 2025 Comments Off on Living Well with ALS: Dawn McCrea

Dawn McCrea was diagnosed with ALS just over 20 years ago at age 40. Today, she continues to defy every expectation. And she’s not just surviving — she actively seeks…

2024 Gratitude Report: Spotlight on Meghan Kahn

August 1, 2025 Comments Off on 2024 Gratitude Report: Spotlight on Meghan Kahn

This story appears in our 2024 Gratitude Report. Download the full report to learn more about our work. When Meghan met her husband Jonathan through a mutual friend in college,…

Living Well with ALS: Willie Santos 

June 5, 2025 Comments Off on Living Well with ALS: Willie Santos 

Willie is an incredible example of what it looks like to stay humorous and engaged in community—even while facing a difficult diagnosis. Before Willie’s ALS diagnosis on April 10, 2023,…

Living Well with ALS: William Moore

April 3, 2025 Comments Off on Living Well with ALS: William Moore

William Moore of Phoenix, Oregon prioritizes community and chooses gratitude daily. He encourages people with ALS to stay connected and take advantage of support groups. William has never been one…

Living Well with ALS: Karolyn Dibetta

January 8, 2025 Comments Off on Living Well with ALS: Karolyn Dibetta

Karolyn Dibetta lives on a peaceful, hilltop property spanning 14 acres in the small town of Merlin, Oregon (near Medford). Recently diagnosed with ALS, Karolyn is navigating this journey with…

Living Well with ALS: George Lee

January 5, 2025 Comments Off on Living Well with ALS: George Lee

George Lee lives in Bend, Oregon with his wife Caryn and cat Tuffin. George is an Army Veteran with a long and distinguished career as a Military Police Officer and…

Living Well with ALS: John Morehouse

November 13, 2024 Comments Off on Living Well with ALS: John Morehouse

John Morehouse of Hood River, OR speaks highly of the services available to him through ALS Northwest. He shared, “I’ve never experienced the kind of support I get for ALS……

The Power of ALS Research: Terry Smith

August 14, 2024 Comments Off on The Power of ALS Research: Terry Smith

A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…

Living Well with ALS: Colin Meagher

July 10, 2024 Comments Off on Living Well with ALS: Colin Meagher

Colin Meagher’s story is one of adventure. A former photographer by trade, Colin also had a passion for snowboarding, climbing, and other high-adrenaline outdoor activities. He attends the Hood River ALS…

Moments I’ll Never Forget: Whitney Parnell’s Story

June 28, 2024 Comments Off on Moments I’ll Never Forget: Whitney Parnell’s Story

Whitney Parnell is a current board member. She generously contributed the story below about her father, Steven Stern, and his ALS diagnosis. Steven passed away in 2015. When someone you…