News & Stories
I met Donna and Brian Bogardus while settling into their new 55 and older community in Fairview, Oregon. Both are US Navy veterans, who recently moved from Klamath Falls to…
Scott and Stephanie Mclagan live outside of Bend, Oregon. Scott and Stephanie have been married for over five decades. Scott has cared for Stephanie since her ALS diagnosis in 2009.…
Dorothy Piazza has lived in John Day, Oregon since 1989. When she was diagnosed with ALS in October 2022, she worried that she would have to move somewhere else because…
Updated 1/31/24 David’s ALS symptoms started gradually, as he noticed he lacked the dexterity to button his shirts and his balance became unsteady. What started out as small inconveniences grew…
Beth and Randy Paullus of Hermiston, Oregon are doing their best to prepare for an unplanned future with ALS. “You know, I’m just glad we love each other now that…
Are you a caregiver, person living with ALS or PLS, or experiencing grief from the loss of a loved one? Steve Florin of Jacksonville, Oregon is a loyal attendee of…
The Chapter nominated Brian Epp for the SWWA Community Foundation Community Champion award in 2023. The following essay was submitted on his behalf. Although Brian was not selected, he will…
Matter of Mind: My ALS is a new documentary that follows three people living with ALS. The film is available to stream for free here with the password: ALS. Development…
Humed Yusuf was born in Bangladesh and dreamed of moving to the US. He came to Kentucky for college and following school, explored New York, Wisconsin, and Oregon. “I think…
Vashti Ross passed away on Tuesday, July 11th. She was incredible champion for our mission and will be missed. Vashti Ross was diagnosed with ALS in 2014. Knowing that research…
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