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News & Stories

Brian Epp: SWWA Community Foundation Community Champion Nominee

August 24, 2023 Comments Off on Brian Epp: SWWA Community Foundation Community Champion Nominee

The Chapter nominated Brian Epp for the SWWA Community Foundation Community Champion award in 2023. The following essay was submitted on his behalf. Although Brian was not selected, he will…

Matter of Mind: My ALS | An interview with the film subject

August 14, 2023 Comments Off on Matter of Mind: My ALS | An interview with the film subject

Matter of Mind: My ALS is a new documentary that follows three people living with ALS. The film is available to stream for free here with the password: ALS. Development…

Humed Yusuf of Beaverton, Oregon

August 10, 2023 Comments Off on Humed Yusuf of Beaverton, Oregon

Humed Yusuf was born in Bangladesh and dreamed of moving to the US. He came to Kentucky for college and following school, explored New York, Wisconsin, and Oregon. “I think…

Vashti Ross of Beaverton, OR

June 29, 2023 Comments Off on Vashti Ross of Beaverton, OR

Vashti Ross passed away on Tuesday, July 11th. She was incredible champion for our mission and will be missed. Vashti Ross was diagnosed with ALS in 2014. Knowing that research…

Keith Matteson Authors His ALS Journey

June 13, 2023 Comments Off on Keith Matteson Authors His ALS Journey

Keith Matteson died on Tuesday, August 15th. He was a dedicated champion of our cause, and he will be missed. Keith Matteson of Newport, Oregon was diagnosed with ALS in…

Legacy Building – The Ziegele Family Experience

April 30, 2023 Comments Off on Legacy Building – The Ziegele Family Experience

When Dale and Judy Ziegele of Ridgefield, WA, received Dale’s diagnosis of ALS in September of 2022 at the age of 79, their focus changed.   Dale and Judy have been…

Bruce Stoddard of Vancouver, Washington

April 24, 2023 Comments Off on Bruce Stoddard of Vancouver, Washington

One day, Bruce Stoddard started to notice his right ankle acting strange, as if it was asleep all the time. He spent a year and a half trying to find…

Larry Holtry of Beaverton, Oregon

April 24, 2023 Comments Off on Larry Holtry of Beaverton, Oregon

Larry Holtry is a positive guy. He always has been. He spent over 30 years in a lucrative sales career, where a positive attitude is essential to be successful. When…

More Than Just Food: The Dietitian’s Critical Role in ALS

April 14, 2023 Comments Off on More Than Just Food: The Dietitian’s Critical Role in ALS

Multidisciplinary care, a term for when professionals from a range of disciplines work together to deliver comprehensive care, is incredibly valuable for people living with ALS. At an ALS Clinic,…

Ruth Greiner of Coos Bay, Oregon

April 12, 2023 Comments Off on Ruth Greiner of Coos Bay, Oregon

Dedicated Teacher, Mother and Grandmother Ruth was diagnosed with primary lateral sclerosis (PLS) at OHSU in 2003 while working as an elementary school teacher in Coos Bay, Oregon. After 31…