News & Stories

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ALS Northwest ends 2025 with Significant Research Investment

January 2, 2026 Comments Off on ALS Northwest ends 2025 with Significant Research Investment

PORTLAND, Ore., Dec. 30, 2025 – ALS Northwest increased its financial investment in ALS research throughout 2025, accelerating new approaches in ALS treatment, prevention, and understanding. These efforts include an initiative…

Amber Smith

Staff Transition: Q&A with Amber Smith, Care Services Coordinator

December 11, 2025 Comments Off on Staff Transition: Q&A with Amber Smith, Care Services Coordinator

As she transitions to a new role as a hospice social worker, Amber Smith reflects on her journey at ALS Northwest, including what she’s learned and her hopes for the…

ALS Northwest and ALS United Announce New Research Grantees 

November 20, 2025 Comments Off on ALS Northwest and ALS United Announce New Research Grantees 

2025 Grantees Advance Breakthroughs in ALS Treatment and Discovery November 20, 2025 – FOR IMMEDIATE RELEASE PORTLAND, OREGON – ALS Northwest, in partnership with 12 ALS United member organizations, announces the…

Robert Packard Center for ALS Research Announces Joint Research Funding

November 5, 2025 Comments Off on Robert Packard Center for ALS Research Announces Joint Research Funding

Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership The Robert Packard Center for ALS Research at Johns Hopkins and ALS United — including ALS…

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ALS Research Innovation Program

November 3, 2025 Comments Off on ALS Research Innovation Program

ALS Northwest has always believed in the power of funding science and research at every stage, from the earliest discoveries at the lab bench to the clinical trials that pave…

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Oregon College Savings Plan Rebrands to “Embark”

October 10, 2025 Comments Off on Oregon College Savings Plan Rebrands to “Embark”

The Elinore Nudelman ALS Savings Program provides a funded 529 Savings Plan through Embark (formerly the Oregon College Savings Plan) for children with a parent or guardian currently living with ALS…

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Introducing: Donor Giving Circles

September 29, 2025 Comments Off on Introducing: Donor Giving Circles

Donors fuel ALS Northwest’s mission, making it possible for us to provide compassionate care for people living with ALS through services like home visits, medical equipment and support groups while…

Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

September 16, 2025 Comments Off on Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

On July 4, 2025, H.R.1 became law, bringing significant changes to federal healthcare programs. The legislation modifies federal spending for Medicaid, Medicare, and the Affordable Care Act (ACA) over the…

2024 Gratitude Report: Special Events Spotlight

August 8, 2025 Comments Off on 2024 Gratitude Report: Special Events Spotlight

This story was inspired by our 2024 Gratitude Report. Download the full report to learn more about our work. It’s because of peer-to-peer fundraising events like Walk ALS, Ski ALS,…

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Introducing the ALS Northwest Community Council 

July 24, 2025 Comments Off on Introducing the ALS Northwest Community Council 

At ALS Northwest, we believe that the most powerful way to serve our community is by listening to those who are a part of it. That’s why we’re proud to…