News & Stories
PORTLAND, Ore., Dec. 30, 2025 – ALS Northwest increased its financial investment in ALS research throughout 2025, accelerating new approaches in ALS treatment, prevention, and understanding. These efforts include an initiative…
2025 Grantees Advance Breakthroughs in ALS Treatment and Discovery November 20, 2025 – FOR IMMEDIATE RELEASE PORTLAND, OREGON – ALS Northwest, in partnership with 12 ALS United member organizations, announces the…
Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership The Robert Packard Center for ALS Research at Johns Hopkins and ALS United — including ALS…
ALS Northwest has always believed in the power of funding science and research at every stage, from the earliest discoveries at the lab bench to the clinical trials that pave…
At the heart of Oregon Health & Science University (OHSU) in Portland, Oregon is an extraordinary team of scientists—all women, led by Dr. Bahareh Ajami. Dr. Ajami and her team…
Research Spotlight Researchers to Analyze Medication Effects on the Development and Progression of ALS and Parkinson’s Diseases ALS United, in partnership with the ALS CURE Project, Livermore Lab Foundation, RDM…
Updates From Our Executive Director: With spring in full bloom and as we move into this new year together, I’m looking forward to connecting with you more regularly through blog…
A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…
Have you heard? RAPA Therapeutics’ recent Expanded Access Protocol (EAP) allows people with ALS who are otherwise ineligible for clinical trials to access a promising new treatment called RAPA-501. Donors…
ALS United, along with its dedicated members, has taken a significant step in the battle against amyotrophic lateral sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…