News & Stories
Updates From Our Executive Director: With spring in full bloom and as we move into this new year together, I’m looking forward to connecting with you more regularly through blog…
A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…
Have you heard? RAPA Therapeutics’ recent Expanded Access Protocol (EAP) allows people with ALS who are otherwise ineligible for clinical trials to access a promising new treatment called RAPA-501. Donors…
ALS United, along with its dedicated members, has taken a significant step in the battle against amyotrophic lateral sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…
Dr. Melanie Fried-Oken is researching ways to help people with severe disabilities use brain-computer interface (BCI) technology to communicate. When using the BCI, people wear an electrode cap (like a…
Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…
Join us here on November 4 at 1 p.m. for an educational afternoon to learn about the latest in ALS research with live presentations from local and nationally esteemed ALS…
Did you know that we host an annual ALS research symposium where some of the nation’s foremost researchers come together to share the most promising findings from the hundreds of…
Donors play a crucial role in the development of new ALS medications, such as Tofersen. We need the support of our friends and family to continue these efforts. By giving today,…
Vashti Ross passed away on Tuesday, July 11th. She was incredible champion for our mission and will be missed. Vashti Ross was diagnosed with ALS in 2014. Knowing that research…