News & Stories

2024 Gratitude Report: Volunteer Program Spotlight

August 5, 2025 Comments Off on 2024 Gratitude Report: Volunteer Program Spotlight

This story appears in our 2024 Gratitude Report. Download the full report to learn more about our work. In 2024, 33 people served as Helping Hands volunteers for people living with ALS,…

Text-to-voice device

ALS and Communication: Commons Terms and Tools

June 24, 2025 Comments Off on ALS and Communication: Commons Terms and Tools

Note: This article was edited on 7/18/2025 for clarity and to provide additional resources. Did you know? Assistive technology is any item, product, or system that supports a person’s ability…

Power wheelchairs

Spotlight on the Medical Equipment Program  

August 13, 2024 Comments Off on Spotlight on the Medical Equipment Program  

Through our Medical Equipment Program, ALS Northwest fills in the gaps and reduces costs for people living with ALS. This article is from the 2023 Annual Report. Since 2002, ALS…

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Care Services Digest – May 2024

May 20, 2024 Comments Off on Care Services Digest – May 2024

Family Fun Day: Save the Date!   We invite people living with ALS and their families to join us for the following Family Fun Day Events this summer/fall. We hope you’ll…

Dr. Gregory Ferenz's headshot

Holistic Care in Central Oregon: Gregory Ferenz, DO

March 28, 2024 Comments Off on Holistic Care in Central Oregon: Gregory Ferenz, DO

Dr. Ferenz is the new ALS Clinic Medical Director at Pacific Crest Neurology in Bend, OR. He speaks on the impact of comprehensive care that includes quality of life assessments…

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Care Services Digest – February 2024

February 14, 2024 Comments Off on Care Services Digest – February 2024

Caring for someone living with ALS is hard work. ALS Northwest offers a variety of opportunities for caregivers to connect with professionals and one another. Whether it’s through a monthly…

ALS Northwest’s Bereavement Program

January 12, 2024 Comments Off on ALS Northwest’s Bereavement Program

In 2023, ALS Northwest launched our Bereavement Program, which provides grief support services to people in our community.  Why did we establish a Bereavement Program? Thanks to our strong community…

National Guidelines for ALS Genetic Testing, Counseling Published

November 7, 2023 Comments Off on National Guidelines for ALS Genetic Testing, Counseling Published

Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…

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Care Services Digest – August 2023

August 16, 2023 Comments Off on Care Services Digest – August 2023

August Educational Talk: End of Life Choices Oregon Aug 30, 2023 03:00 PM (PST) Sue Porter, of End of Life Choices Oregon will discuss end of life options for People living…

ALS Family Fun Days

August 6, 2023 Comments Off on ALS Family Fun Days

People living with ALS and their families are invited to join us for the following Family Fun Day Events. We hope you will join us to celebrate family, make new…