News & Stories
When Kelly was diagnosed with ALS at just 30 years old, the weight of what lay ahead felt overwhelming. She has familial ALS, a hereditary form of ALS that accounts for 5-10% of all ALS cases. Her father died…
This story appears in our 2024 Gratitude Report. Download the full report to learn more about our work. In 2024, 33 people served as Helping Hands volunteers for people living with ALS,…
Note: This article was edited on 7/18/2025 for clarity and to provide additional resources. Did you know? Assistive technology is any item, product, or system that supports a person’s ability…
Through our Medical Equipment Program, ALS Northwest fills in the gaps and reduces costs for people living with ALS. This article is from the 2023 Annual Report. Since 2002, ALS…
Family Fun Day: Save the Date! We invite people living with ALS and their families to join us for the following Family Fun Day Events this summer/fall. We hope you’ll…
Dr. Ferenz is the new ALS Clinic Medical Director at Pacific Crest Neurology in Bend, OR. He speaks on the impact of comprehensive care that includes quality of life assessments…
Caring for someone living with ALS is hard work. ALS Northwest offers a variety of opportunities for caregivers to connect with professionals and one another. Whether it’s through a monthly…
In 2023, ALS Northwest launched our Bereavement Program, which provides grief support services to people in our community. Why did we establish a Bereavement Program? Thanks to our strong community…
Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…
August Educational Talk: End of Life Choices Oregon Aug 30, 2023 03:00 PM (PST) Sue Porter, of End of Life Choices Oregon will discuss end of life options for People living…