Federal Healthcare Changes: How ALS Northwest Will Support the ALS Community

On July 4, 2025, H.R.1 became law, bringing significant changes to federal healthcare programs. The legislation modifies federal spending for Medicaid, Medicare, and the Affordable Care Act (ACA) over the next decade. These changes will affect how millions of Americans — including thousands of people living with ALS and their caregivers — access essential care and services. 

What’s Changing 

The new law includes: 

• A $911 billion reduction in federal Medicaid spending over 10 years 

• New requirements for certain Medicaid recipients beginning in December 2026, including reporting work or community activities 

• Changes to eligibility verification processes, with reviews every six months for some recipients 

• Modifications to how states fund their share of Medicaid costs 

• Potential impacts on Medicare coverage for some beneficiaries 

• A $50 billion Rural Health Transformation Program to support rural healthcare providers 

According to the Congressional Budget Office, an estimated 10.9 million people may lose health coverage by 2034 as these provisions are implemented. 

How We’re Here to Help 

ALS Northwest remains committed to providing free, personalized care services to all people living with ALS and their families — regardless of insurance coverage or immigration status. Our services include: 

• Navigation Support: Helping you understand new eligibility requirements. 

• Direct Services: Providing equipment loans, financial assistance support, and home accessibility options.

• Care Coordination: Connecting you with specialty care, clinical trials, and support services.

• Caregiver Support: Offering educational programs and resources for family caregivers.

Our Commitment 

We recognize that policy changes can create uncertainty. That’s why we want you to know: 

• We will continue advocating for policies that protect access to care 

• Our services remain available to everyone in the ALS community 

• We’re monitoring how these changes unfold and will keep you informed 

For people living with ALS, timely access to multidisciplinary care, equipment, and in-home support remains critical. While the healthcare landscape is changing, our mission remains constant: ensuring every family affected by ALS receives the support they need. 

Stay Connected and Get Support 

• Questions? Contact your ALS Northwest care services team directly. Our Care Coordinators are here to help guide you through any changes. 

• Stay Informed: Follow us for updates as implementation details become clearer. 

• Share Your Experience: Your stories help us better understand community needs and advocate effectively.

As we learn more about how this legislation will be implemented at the state level, we’ll provide regular updates. Some provisions won’t take effect immediately, giving us time to prepare together.