News & Stories

Terry Smith and his Walk team

The Power of ALS Research: Terry Smith

August 14, 2024 Comments Off on The Power of ALS Research: Terry Smith

A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…

Colin Meagher

Living Well with ALS: Colin Meagher

July 10, 2024 Comments Off on Living Well with ALS: Colin Meagher

Colin Meagher’s story is one of adventure. A former photographer by trade, Colin also had a passion for snowboarding, climbing, and other high-adrenaline outdoor activities. He attends the Hood River ALS…

A man with ALS standing in front of a view of a mountain in the background

Moments I’ll Never Forget: Whitney Parnell’s Story

June 28, 2024 Comments Off on Moments I’ll Never Forget: Whitney Parnell’s Story

Whitney Parnell is a current board member. She generously contributed the story below about her father, Steven Stern, and his ALS diagnosis. Steven passed away in 2015. When someone you…

Sherry LaSalle in her living room

Living Well with ALS: Sherry LaSalle

March 1, 2024 Comments Off on Living Well with ALS: Sherry LaSalle

Sherry’s story highlights the importance of support systems and proactivity in navigating this challenging disease. A California native, Sherry LaSalle moved to Oregon in November of 2020 at the behest…

ALS Family Caregiver Spotlight: Amber Jenson

November 5, 2022 Comments Off on ALS Family Caregiver Spotlight: Amber Jenson

Written by Laura Geilenfeldt, LMSW – Southern Oregon Care Services Coordinator I recently had the privilege of meeting with Jonathan and Amber Jenson. In honor of Caregiver Appreciation Month, I…

John Schaffers and His Remarkable Legacy: Moving the ALS Research Needle Forward 

March 10, 2022 Comments Off on John Schaffers and His Remarkable Legacy: Moving the ALS Research Needle Forward 

The ALS Association Oregon and SW Washington Chapter has funded two major research grants totaling $1,000,000 to support the work of scientists at Johns Hopkins University and Rapa Therapeutics who…

The Oregon and SW Washington Chapter Gives Unprecedented $1,000,000 for Two Cutting-Edge ALS Research Projects 

March 10, 2022 Comments Off on The Oregon and SW Washington Chapter Gives Unprecedented $1,000,000 for Two Cutting-Edge ALS Research Projects 

Research funding made possible through a bequest from John Schaffers   Portland, OR (March 10, 2022) — The ALS Association Oregon and SW Washington Chapter has funded two major research grants…