News & Stories

Willie Santos

Living Well with ALS: Willie Santos 

June 5, 2025 Comments Off on Living Well with ALS: Willie Santos 

Willie is an incredible example of what it looks like to stay humorous and engaged in community—even while facing a difficult diagnosis. Before Willie’s ALS diagnosis on April 10, 2023,…

Rocky and Becky Dallum

Rocky and Becky Dallum: Honoring the Past and Inspiring the Future

May 1, 2025 Comments Off on Rocky and Becky Dallum: Honoring the Past and Inspiring the Future

For Rocky Dallum, giving back to ALS Northwest is personal. His mother passed away from ALS when she was 52, just as Rocky was entering adulthood at 18. At the…

William and Nikola Moore

Living Well with ALS: William Moore

April 3, 2025 Comments Off on Living Well with ALS: William Moore

William Moore of Phoenix, Oregon prioritizes community and chooses gratitude daily. He encourages people with ALS to stay connected and take advantage of support groups. William has never been one…

Hello from ALS Northwest’s New Executive Director

February 5, 2025 Comments Off on Hello from ALS Northwest’s New Executive Director

A New Start I am so honored to be stepping into the role of Executive Director and to lead this incredible organization into the future. Over the years, I have…

Two sisters sitting down

Living Well with ALS: Karolyn Dibetta

January 8, 2025 Comments Off on Living Well with ALS: Karolyn Dibetta

Karolyn Dibetta lives on a peaceful, hilltop property spanning 14 acres in the small town of Merlin, Oregon (near Medford). Recently diagnosed with ALS, Karolyn is navigating this journey with…

George Lee

Living Well with ALS: George Lee

January 5, 2025 Comments Off on Living Well with ALS: George Lee

George Lee lives in Bend, Oregon with his wife Caryn and cat Tuffin. George is an Army Veteran with a long and distinguished career as a Military Police Officer and…

Diana Hendrickson

Honoring the Legacy of Diana Hendrickson

January 2, 2025 Comments Off on Honoring the Legacy of Diana Hendrickson

Diana Hendrickson passed away on November 29, 2024. She was a dedicated Board Member and advocate for people living with ALS. Diana Hendrickson’s life was a testament to love, dedication,…

John and Sherry Morehouse at dinner

Living Well with ALS: John Morehouse

November 13, 2024 Comments Off on Living Well with ALS: John Morehouse

John Morehouse of Hood River, OR speaks highly of the services available to him through ALS Northwest. He shared, “I’ve never experienced the kind of support I get for ALS……

Gabriel O'Brien

7 Questions with Our New Care Services Coordinator

October 8, 2024 Comments Off on 7 Questions with Our New Care Services Coordinator

Gabriel O’Brien is the new Care Services Coordinator for the Portland metro region at ALS Northwest. Jennifer Jordan from our communications team recently sat down with him for a brief…

Terry Smith and his Walk team

The Power of ALS Research: Terry Smith

August 14, 2024 Comments Off on The Power of ALS Research: Terry Smith

A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…