Row rect Shape Decorative svg added to top

News & Stories

Living Well with ALS: Karolyn Dibetta

January 8, 2025 Comments Off on Living Well with ALS: Karolyn Dibetta

Karolyn Dibetta lives on a peaceful, hilltop property spanning 14 acres in the small town of Merlin, Oregon (near Medford). Recently diagnosed with ALS, Karolyn is navigating this journey with…

Living Well with ALS: George Lee

January 5, 2025 Comments Off on Living Well with ALS: George Lee

George Lee lives in Bend, Oregon with his wife Caryn and cat Tuffin. George is an Army Veteran with a long and distinguished career as a Military Police Officer and…

Honoring the Legacy of Diana Hendrickson

January 2, 2025 Comments Off on Honoring the Legacy of Diana Hendrickson

Diana Hendrickson passed away on November 29, 2024. She was a dedicated Board Member and advocate for people living with ALS. Diana Hendrickson’s life was a testament to love, dedication,…

Living Well with ALS: John Morehouse

November 13, 2024 Comments Off on Living Well with ALS: John Morehouse

John Morehouse of Hood River, OR speaks highly of the services available to him through ALS Northwest. He shared, “I’ve never experienced the kind of support I get for ALS……

7 Questions with Our New Care Services Coordinator

October 8, 2024 Comments Off on 7 Questions with Our New Care Services Coordinator

Gabriel O’Brien is the new Care Services Coordinator for the Portland metro region at ALS Northwest. Jennifer Jordan from our communications team recently sat down with him for a brief…

The Power of ALS Research: Terry Smith

August 14, 2024 Comments Off on The Power of ALS Research: Terry Smith

A new treatment in 2023 changed the medical landscape for Terry Smith, a person living with ALS in Hood River, Oregon. This article is from the 2023 Annual Report. Terry…

Living Well with ALS: Colin Meagher

July 10, 2024 Comments Off on Living Well with ALS: Colin Meagher

Colin Meagher’s story is one of adventure. A former photographer by trade, Colin also had a passion for snowboarding, climbing, and other high-adrenaline outdoor activities. He attends the Hood River ALS…

Moments I’ll Never Forget: Whitney Parnell’s Story

June 28, 2024 Comments Off on Moments I’ll Never Forget: Whitney Parnell’s Story

Whitney Parnell is a current board member. She generously contributed the story below about her father, Steven Stern, and his ALS diagnosis. Steven passed away in 2015. When someone you…

Living Well with ALS: Deirdre Austin

May 21, 2024 Comments Off on Living Well with ALS: Deirdre Austin

Deirdre wasn’t shocked when she received her ALS diagnosis in September 2023. Her father, grandfather, and even great-grandfather all had the disease. Familial ALS is rare and comprises 5-10% of…

Living Well with ALS: Sherry LaSalle

March 1, 2024 Comments Off on Living Well with ALS: Sherry LaSalle

Sherry’s story highlights the importance of support systems and proactivity in navigating this challenging disease. A California native, Sherry LaSalle moved to Oregon in November of 2020 at the behest…