News & Stories
Have you heard? RAPA Therapeutics’ recent Expanded Access Protocol (EAP) allows people with ALS who are otherwise ineligible for clinical trials to access a promising new treatment called RAPA-501. Donors…
ALS United, along with its dedicated members, has taken a significant step in the battle against amyotrophic lateral sclerosis (ALS) by collectively supporting the Accelerating Medicines Partnership (AMP) ALS initiative.…
Blog post from the ALS Association. View original source. Current status On April 25, 2023, the FDA approved tofersen under the agency’s accelerated approval pathway for the treatment of people living…
The ALS Association Oregon and SW Washington Chapter has funded two major research grants totaling $1,000,000 to support the work of scientists at Johns Hopkins University and Rapa Therapeutics who…
Research funding made possible through a bequest from John Schaffers Portland, OR (March 10, 2022) — The ALS Association Oregon and SW Washington Chapter has funded two major research grants…