News & Stories All AllAdditional ResourcesAdvances in TechnologyAdvocacyCaregivingGrief ResourcesLatest ResearchLiving Well with ALSOrganization AnnouncementsServices for People with ALSWalk ALSWays to GiveYouth Resources Hello from ALS Northwest’s New Executive Director Calling All Oregonians! Give Back Through Your Taxes Living Well with ALS: Karolyn Dibetta 22 Days of Giving (January 10-31, 2025) Living Well with ALS: George Lee Important Leadership Changes at ALS Northwest 1 2 3 … 17 Next » Share Your ALS Story Name(Required) First Last Email(Required) Are you a person living with ALS/PLS/PMA?(Required) Yes No Are you a Veteran?(Required) Yes No When were you diagnosed?(Required)What is your relationship to ALS/PLS/PMA?(Required)Share Your Story(Required)Consider addressing questions like: What was the process of getting diagnosed like for you? How have you adapted and how do you cope today? What did/do you do for work and for fun, and how have these changed? What does your family/support network look like?Add a PhotoUpload at least one photo of yourself or other imagery that is relevant to your story.Accepted file types: jpg, jpeg, png, gif.Add a Video (Optional)YouTube or Vimeo URL Additional Photo (Optional)Accepted file types: jpg, jpeg, png, gif.Additional Photo (Optional)Accepted file types: jpg, jpeg, png, gif.Video/Photo Release(Required)I hereby grant permission to ALS Northwest to use my likeness in video and/or photographic materials for promotional and educational purposes. I understand and agree to the following terms: 1. Release of Likeness: I authorize ALS Northwest to use, reproduce, and distribute images and/or videos of myself taken during ALS Northwest events, programs, or activities. 2. Purpose of Use: I understand that my likeness may be used for promotional materials, including but not limited to, brochures, newsletters, websites, social media, and other marketing materials. 3. No Compensation: I waive any right to inspect or approve the finished product wherein my likeness appears. I understand that I will not receive any financial compensation for the use of my likeness. 4. Release: I release ALS Northwest, its employees, and any third parties involved in the creation or publication of marketing materials, from liability for any claims by me or any third party in connection with my participation or the use of my likeness. 5. Duration of Consent: This release shall remain valid indefinitely unless otherwise revoked by me in writing. 6. Revocation of Consent: I understand that I may revoke this consent at any time by providing written notice to ALS Northwest. However, any materials already produced or distributed prior to the revocation shall remain in circulation. I agree to the video/photo release terms.